The Cystic Fibrosis Support Network of Michigan (CFSN) is a 501.c.3 charity.
Our goal was created by the CF community themselves.
They asked us to help bring some joy and lightness into their lives.
Why we want to help
Quotes were taken off the Cystic Fibrosis Foundation web site on Feb. 2017.
People with chronic diseases, such as CF, are at greater risk for developing clinical depression. When left untreated, depression can interfere with your ability to manage your CF effectively and experience a better quality of life.
Caring for anyone with a long-term disease — especially if that person is your child — is stressful. Parents of children with CF are more likely to experience anxiety, depression or both compared to parents in general.
Breakthrough treatments have added years to the lives of people with cystic fibrosis. Today the median predicted survival age is close to 40. This is a dramatic improvement from the 1950s, when a child with CF rarely lived long enough to attend elementary school.
While there has been significant progress in treating this disease, there is still no cure and too many lives are cut far too short.
To learn more about cystic fibrosis and its impact go to Cystic Fibrosis Foundation (cff.org).
Formally known as Michigan Pulmonary Disease Community Inc. or MPDCI.org